In my thoughts today... we have seen 3 dr's in the past 3 weeks (and one ER visit). First our Dev. pediatrician had some good thoughts to pass on. She also is worried about the same things that we are regarding school, plus had a few of her own to pass on. Josiah needs to gain some weight and there seems to be something new going on with his eyes. Some darkening on that back sides of his eyes... really don't know what that is but I will leave that for the opthamologist to deal with. She also talked about doing some Neuro-Psychology testing to help us figure out particular learning disabilities he may be experiencing and also flush out what his anxiety problems may be about as well. Many words that were mentioned were mood type disorders or generalized anxiety disorder as well as panic disorder. As if he needs anyone to lump on one more "diagnosis". But as another one of our Dr's mentioned, it's not that we (Dr's) are just trying to throw a diagnosis on Josiah, it's more we are trying to figure out the best ways to treat him and names help them do that... as well as keeping insurance paying for all these things as well.
Our regular Dr has been helping us with Josiah's continued urinary problems as well as the bowel issues (hence the ER visit). We are trying different things right now to help alleviate some pain and discomfort associated with these problems. I think the main thing is diet and keeping enough fiber in him plus maintaining a healthy enough that allows for weight gain.
Our most recent visit with Josiah's Psychiatrist, just hubby and I met with him, we were so glad to have this chance to talk freely about what is going on and voice our concerns. Some of the main topics mentioned again were NeuroPsych testing, figuring out the diagnosis so they can better treat him, and again we are pursuing a possible school change. This would not necessarily be another school, per say, but more of a day treatment center where they can not only teach him in a safer, more controlled environment but also provide different therapies that help him learn in the way he needs to learn. (He hasn't seemed to learn anything new this school year and we are quite concerned that if he continues to have school avoidance problems that later on in his school years that this will be much harder to deal as the older he gets.)
Now that I have finished several Dr's phone calls, 3 different pharmacy's, and a call to Mental Health insurance, and 2 Dr's emails written, I am ready to hang up my "organizer" hat for the day and head to the kitchen. Hoping I have enough energy leftover to channel my inner Julia Child and make some delicious dinner to nourish my family with.
Be blessed.
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