I have been pondering lately about the path that God had led my family down this past year. I could possibly say it has been the most difficult year of my life thus far, but that may not be true, because difficulty is relative.
Anyway, it all started about a year ago now, at Josiah's 5th yr Dr. appt. We met with our family Dr about Josiah and his various behavior issues and other concerns we had about his developmental growth. We were referred to a Developmental Pediatrician, but had to wait 5 months to see her. In the meantime we were also referred to Multnomah Early Childhood Program, which sent us into a long list of tests and observation times. At the end of all that, he was educationally diagnosed with Autism Spectrum Disorder, which entitled him to special education preschool held at Roseway Heights school, and also sent us on the path to get an IEP in order for his kindergarten year.
By the time we were done with all the testing through the school system we were now into full swing the Developmental Pediatrician and occupational therapy. Our Dev. Ped. told us that she was not going to give him a medical diagnosis of Autism but more that she believed he has Sensory Integration Disorder. She began treating him for that with medication. That was a very difficult road for us to choose becuase we have never believed that medication would help him, but gave it a try and it has actually helped wonders! He also has a reflux disorder which gives him terrible stomach aches, of which I can totally sympathize! So he was on temporary medication for that and currently waiting to see what we will do next to help him not feel so yucky all the time.
Back in May we met with Portland Public Schools and got his Individual Education Plan (IEP) set up. That was another road that was hard to navigate but after attending an all day seminar and doing a lot of research on the internet and speaking with several other parents about the process I felt very educated on how this process works. It went incredibly smooth and I was even told several times that I had an amazing grasp on the process and should help other parents. I have kept this in my mind, and know that someday God will use this journey for someone else's good.
All I can say about the summer is that it was filled with lots of fantastic times and trips and probably an equal amount of frustration on my end becuase of the lack of schedule in Josiah's life throws us all into a tailspin.
Through all that, it has taken us back to Roseway Heights for Josiah to start Kindergarten. It wasn't until last night, Back to School night, that I have finally understood why Josiah was placed in this particular class. His teacher, (General Education Kindergarten class) not only has a bachelor degree in Elementary Education but also a Bachelor in Special Education and Masters in Special Education. Basically she knows her stuff and I am super impressed! I am in awe of how God has used this last year to take us down a tough road, but one that has made me a better mommy and has placed Josiah in the perfect place for him at this time of his life! I truly believe that he is exactly where he needs to be and am so glad that he is set up to start his school adventures in such a positive and amazing atmosphere.
One more thing that I want to express but am struggling with the right words. So forgive me if I come across in the wrong way. We are always being told by all kinds of people that Josiah is incredibly intelligent. Well I just kind of get the impression that parents are told that often. Well last night I came to understand that no, he really is "crazy smart" as Jonny and I have lovingly described him. The student teacher in Josiah's kindergarten class is a student at PSU. She already has a bachelor degree in Elementary Education and is currently working on her Masters in Special Education. She pulled me aside last night to tell me that her thesis paper that she is working on currently is about how the Special Education system in Portland and how it is helping and how it not meeting the needs of certain types of children. She went on to ask me if I knew how incredibly intelligent Josiah is? And told me that Josiah is unlike any other child she has ever met, he has incredibly unique needs and he posseses skills, talent, and knowledge that other children his age do not have. We have known that for years, but it is nice to hear a professional say it! Anyway, she went on to ask me if she could include Josiah in on her Thesis and follow his school year, to see what is working for him, what could be better for him at school, and how he progresses throughout the year. This woman wants to write part of her Thesis paper about my son! I was incredibly touched by that thought. We are constantly in awe of how amazing he is to us but to hear from other people how he touches their lives and how interesting he is to others is just undescribable! I wonder some days how we got blessed with such awesome kids?!
We are so incredibly blessed! We are not only blessed with 2 amazing boys who we love so much and but an equally amazing family surrounding us and to know that ultimately are in God's will, no matter how hard the days go, we are truly BLESSED!